Tuesday, November 25, 2008

Nifurtimox and Vermont

Tim will be taking Dylan to Vermont for a consultation with Dr Sholler on Wednesday 3rd December. They will stay for 2 nights at the RMDH in Vermont and Dylan will undergo a series of tests and scans. Nifurtimox is just one of the trials offered at Vermont and to my knowledge there are a few coming up in the near future that will will also discuss. Nirfurtimox studies for Neuroblastoma started in Vermont in November 2006. We have been keeping a close eye on the results and now feel that 2 years later, we need to look into this further and make a decision whether to put Dylan on the trial while awaiting trials at MSKCC. Our objective has always been to get Dylan cancer free, our other objective is to maintain quality and quantity of life, something we are succedding at very well right now. Our decison on whether Dylan will start on any of the trials at Vermont will depend on maintaining his quality of life (minimal side effects) Vs possible effectiveness of the therapy used. It is a hard decision for us to make, Dylan is doing so great and feeling fantastic, living his life as closely to a normal 10 year old as possible, but at the same time we want to see Dylan free from cancer completely. We don't want to leave any stone unturned, so we are going to Vermont to at least pick up the stone and look at it, laying the foundations for therapy in the event of progression etc. Anyway, I have included this video below for those interested in the scientific side of things. Dr Sholler speaks about Nifurtimox in this presentation in 2007.