Dylan is doing great, we are still blessed with stable disease and we are very grateful for that. We attempted a stem cell harvest, but unfortunately the CD34 test showed that there were none to harvest. We will try again in a few months, our little friend Zack is having the same issue after 2 attempts. I read an email from the Band of Parents and the good news is that there are many trials cooking in the lab and that the GD2 vaccine therapy that we are waiting on, has made it through the biggest hurdle with the FDA and is now up to the packaging stage, the release date is still TBA. There is a new adoptive cell therapy being worked on as well as the humanizing of 3F8 and a DNA vaccine. We also learned of a new high dose 3 F8 trial, that will be believed to have the ability to blow through HAMA, meaning that kids like Dylan, who are HAMA positive will have an opportunity to receive 3F8, the release date for this is TBA but should not be too far away. All this is very exciting and has put me in high spirits. The 60 minutes show still has not been aired and I still have no date, but hopefully it will be soon. Dylan so far is doing fine on the Celebrex and Thalidamide, it just makes him tired in the evenings and very hard to wake up in the morning as he seems to sleep very deeply. He has had a slight appetite drop but then his hunger comes in waves and he picks up a bit. We celebrated Anzac day at the Australian bar/restaurant, the boys had a great time, Cain helped out with the DJ most of the time and Dylan did his usual social butterfly around the large amount of fellow Aussies who were there to celebrate the Australian holiday. I am attempting to attend this year’s Neuroblastoma Conference in
It is again with great sadness to ask you to pray for