Dylan is doing great. He has been busy with teachers in the afternoons and getting involved with the RMDH activities in the evenings as well as playing with friends. On Tuesday we went to clinic and signed the consent forms for the 3F8 therapy Protocol: 05-015A. We also picked up the medications required and had a CBC blood test that surprisingly revealed that Dylan’s counts were ok and no transfusions were needed. Dr Kushner explained that the team was to meet that afternoon to confirm Dylan's commencement on the study next Monday and that he would call me if there were any changes, but he was 95% sure he would start on the 26th. Well the next morning I got a call that the team had decided to postpone the therapy for another week due to his
The test results from the scans etc came back as stable. The CT scan says there is no evidence in the brain, chest, liver, spleen, pancreas, gallbladder or kidneys. Multiple bony lesions are again identified but no new lesions are seen since the last scan. The MIBG scan – Findings: Persistent, essentially unchanged abnormal radiotracer activity are visualized in the skull, left posterior upper chest, right anterior rib, multiple thoracic and lumbar vertebrae, bony pelvis and femora. Impression: Widespread stable MIBG avid disease, no definite new abnormal uptake identified since
OK, now that the medical stuff is out of the way, lets talk about the good and fun stuff. Well Dylan and the rest of the RMDH kids got to meet 2 players from the famous New York Knicks Basketball team, Channing Frye and Eddy Curry. They even autographed a basketball for Dylan!
Dylan also got a wonderful surprise from
More recent photos of this weeks camera snaps can been seen HERE