Wednesday, March 28, 2007
Borderline
Well Dylan is doing pretty good. He has not needed any blood products (transfusions) last week or this week. His platelets are not high but they are hanging in there enough to not need a boost. The latest HAMA test result came back positive…yes. He is however a borderline positive as he was when he was negative (borderline negative). This means that the difference between being positive and negative for Dylan is borderline either way. The cut off is 1000 and when Dylan was negative he was 956. Now his positive result is between 1000 – 1010. So the 3F8 trial is officially on hold and Dylan will start cycle 2 of Accutane on Monday for 2 weeks, followed by a repeat HAMA test after the cycle. He had some leg pain over the weekend, which scared me a lot, but after consulting with the team, it has been suggested that it is due to the Accutane and not disease progression.
A huge thank you to Bruce Byers who is an extremely talented photographer and dedicated his time and donated his services for the St Baldricks Foundation. To view his beautiful photos visit www.brucebyers.com I think you will be in awe with his gallery as I was.