Friday, January 27, 2006

Dylan meets Ben Graham and the New York Rangers

Australia day…one year since we arrived in New York! The day began with Tim taking Dylan to the hospital for his scan. I am still not well, so I stayed at the Ronald McDonald House. Dylan’s potassium was low again, so another infusion was necessary after the scan. When Tim arrived back, he picked up Cain and they all went to the Eight Mile Creek to meet fellow Australians celebrating the day with some street cricket. Ben Graham was there, the Australian footballer who now plays for the NY Jets. Heathe from the Sunburnt Cow also met Dylan there after the launch of the calendar at Chelsea Piers earlier in the day. A huge thank you from us to Heathe, The Sunburnt Cow, The New York Magpies, Manhattan International Netball Club and Bondi Road Fish and Chips for making this calendar possible and raising money for Operation z Kids. Dylan enjoyed an Aussie meat pie for afternoon snack in the company of Jim from Operation Oz Kids and his daughter Sofia. Channel seven from Australia were also there and had a chat with Dylan, which I believe aired in Australia that night on the news. By 5pm the boys returned to the Ronald McDonald House ready for the next event. The police van took the Ronald McDonald House kids to the Rockefeller Center for the “Skate with the Greats” annual event with the New York Rangers ice hockey team. Dylan was asked up to the Team as an honorary member and presented with his own jersey, with his name on it. Tim said he was really amused when he took Dylan up there in his arms because the crowd cheered and clapped and Dylan waved his arms about as if to say, yeah cheer for me! Then he skated for the first time ever, being escorted by Jason Priestley from Beverley Hills 90210. Adam Harvey, the news reporter from the Herald Sun was there and covered the story along with local news in New York and channel nine from Australia. Adam had rang me earlier in the day to tell me that Nicole Kidman had mentioned Dylan in her UN speech. Nicole is now the goodwill ambassador of the United Nations development fund for women. This morning Tim took Dylan to clinic and the doctor said that the results of the scan show he is still stable. Stable is great, we are happy with that, just frustrated with spinning our wheels in the mud at the moment. Tuesday I will meet with Dr Modak to discuss what he recommends the next phase of treatment should be, whether we keep going on this trial or start something else.