The biggest disappointment is that my best friend Jenni and her daughter who I have not seen in 7 years just landed in LA and is stuck there because of course all the New York airports are closed. They are headed to a hotel as I make this update. Her airline only flies to JFK and that airport will be flooded for a long period. At this stage they are telling her that it will be a week before she can get to NY. The other airlines are selling tickets fast and the prices are insane. We were going to spend my birthday together for the first time in 7 years, but now it looks like she will miss it. I also took next week off work to spend with them but it will now be wasted :( I can't believe a hurricane is coming to NYC, it's such a rare occurrence! Poor Jenni, she never travels and I remember how scary it can be when your not familiar with traveling overseas, I can't believe this is happening! Wish us luck, hurricane Irene will be here very soon.
On a happy note, the humanized antibodies are here! MSKCC started the study this week and I believe 2 patients have started. I am waiting to hear from Dr Modak as to when Dylan can start. We know there are a lot of children who are not as fortunate as Dylan, who remains stable, therefore we are happy to stand back and not pressure the team to get Dylan started yet. My only concern is that the study doesn't close before he gets on, but I know in my heart that Dr Modak would not let that happen. Dylan has been first for a lot of studies, this time we will see the effects on the ones who started this week, be that side effects and disease response. The humanized antibodies sound very promising, I have never heard the team so excited about a new study. Here is a copy of what the head of the Neuroblastoma team at MSKCC had to say, from Dr Cheung
As you have probably heard, we finally got the green light from the FDA. The first ever humanized form of antibody 3F8 is going to be given to neuroblastoma patients starting this week, having gone through all the hurdles, many unforeseen. I want to thank you all for this unprecedented grass root idea, your tireless effort and generosity, and above all, your faith in our ability to get this done. Our hu3F8 is one of the very few drugs specifically made for treating neuroblastoma patients in the history of medicine. We are proud of this enormous effort which will not be possible without your partnership. Words cannot describe the excitement of our clinical and research teams, and hope you will pray for its success, as we all do.