Saturday, February 26, 2005

Dylan doing well

Dylan is doing really well. His rash has completely gone, the diarrhea is better and the pain is minimal. He is still neutropenic so he continues on the 3 antibiotics and GCSF injections daily. The chemo effects are still causing nausea and thick saliva, but usually the anti nausea drugs keep it under control. Hopefully Dylan’s counts will come up soon and we can go back to Ronald McDonald House next week. Dylan had another blood transfusion yesterday and another platelet transfusion this morning. Since surgery Dylan has had 5 platelet transfusions and 2 blood transfusions! We go for daily strolls around the ward, on his walking frame as pictured above and he seems a little bit happier within himself. Dylan still has not eaten so he continues on TPN (IV feeding) and his G-tube feeding, but we cannot get the G-tube feeding past 10ml an hour or he feels sick (usually has 50ml p/h). I am really tired today, so forgive the short update. Dylan wakes several times in the night to go to the bathroom, nausea or because he needs to spit out the build of mucus in his mouth, so it is all taking it's toll on me. But at the same time, there is no place I would rather be than with him, and I am so "over the moon" that he is being treated at MSKCC.

We met Bailee's mom today, they are staying with us at MSKCC, a few rooms down. Bailee has ALL (leukemia) and her wonderful brother donated his own bone marrow in order to give her the gift of life!
www.caringbridge.org/fl/bailee

We also met Peter's mom when we first arrived at McDonald house. Peter has a great story of defying all the odds. Peter is yet another miracle treated at MSKCC.
www.caringbridge.org/pa/peter